This section is intended for patients prescribed Alunbrig. If you are a member of the public click here. If you are a UK healthcare professional click here.

Practical advice and support

Remembering to take your medicine

Remembering to take your medicine on the right day at the right time is important. But it can be difficult to keep track, especially if you're taking lots of different medicines.

Here are some other ideas to keep you on track:

Build a routine and make it a habit. Try to take your medication around a certain activity that you do each day, for example, brushing your teeth, getting ready in the morning or watching television in the evening

Set alarms using a watch or smartphone

Plan ahead if you're going away. Talk to your nurse or pharmacist to work out together how you'll be able to take your medication while you're away

Conversations with your healthcare team

The treatment process for ALK-positive advanced non-small cell lung cancer (aNSCLC) can be overwhelming, especially when you're starting a new treatment. Remember, you're never alone - your oncologist and nurse are there to help you every step of the way.

The suggestions below will help you get the most from your conversations with your healthcare team:

Prepare for your visits

Write down questions as soon as you think of them. Before your visit, look back at your questions, and list the most important ones first, in case time is limited. Keep any other notes and your treatment calendar in one place, and bring them with you to any appointments

Speak up

If answers to your questions are unclear or if you still do not understand something, don't be afraid to speak up. Ask for things to be explained in a different way, for example, to see a brochure, video or even a drawing. Keeping you informed and engaged is a vital part of your healthcare team's role and they will be happy to help

Get in touch when you need to

You don't need to wait for your next scheduled appointment to talk to your healthcare team, especially if something comes up or if you notice any new or worsening symptoms or side effects. Just ask them about the best way to get in touch

Follow up

Taking an active role in your treatment helps you feel in control, so be sure to follow up on appointments, or referrals that were sent, and keep copies of results in your notes. There is no such thing as too much communication so be in regular contact with your healthcare team to help create the best partnership possible

Asking the right questions

With so many things to think about and questions to ask, it can be difficult to know where to start.

The list of questions below reflects some of the things that may be on your mind at any given point. Note the ones that are important to you right now, and ask your doctor or nurse at your next visit.

What should I expect from my treatment?

  • What signs might show that I am responding to treatment?

Questions about starting treatment

  • Will I be able to drive?
  • Will I be able to keep working?
  • What should I avoid taking or drinking whilst on treatment?
  • Can I drink alcohol?
  • Can I make travel plans?
  • If I respond to treatment, should I keep taking it as prescribed?

Questions about tests and monitoring

  • What are the typical tests and scans I will need and how often will I be tested?
  • What tests/results should I keep track of?
  • Can you explain the results of my blood tests?

Questions about side effects

  • What do I do if I have side effects?
  • Should I expect any new or worsening symptoms?
  • How can I help prevent side effects from treatment?

Accepting help from friends and family

Don't be afraid to accept help from your friends and family. They are often eager to help - they just need to know what they can do.

Here are some suggestions on how you can help them help you:

Ask a friend or loved one to come to your appointments with you. They can take notes, keep you on track with any questions you may want to ask, and can talk through anything after the appointment

Talk to them about how you're feeling - it's one way that can help you cope

Create a list of specific tasks that could help you, such as housework, shopping or cooking meals

Support from someone in the same situation

Sometimes you may need to talk with others who are going through something similar to you. The charities below can direct you to online communities or local support groups for when you just need to talk to someone who understands. You can also ask your nurse about local patient support groups

Help and support from charities

The charities above can give you information, practical advice and support about living with ALK-positive aNSCLC:

Information about treatment

Travel advice

Confidential 'Ask a nurse' email support and telephone helplines

Financial advice

Online chat forums

Advice on looking after yourself

Emotional support

Local support networks you can join

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Patient Alert Card

Carry this card with you at all times and take it with you to any medical appointments you may have. You should present it to any doctors or nurses treating you, even if they are not your usual treating oncologist or lung nurse.

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My Patient Booklet

This guide contains information for people taking Alunbrig for the treatment of ALK-positive advanced non-small cell lung cancer (aNSCLC) after previous crizotinib treatment. It also contains the patient alert card.

Download booklet